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lc189, August 26,  2020  7:48am EST

DORV, VSD, First-time Mom


I am new here so not sure how this works. I am a first time mum and after our 22-week scan we have just found out our baby will have 3 heart conditions:
1. Ventricular septal defect
2. Double outlet right ventricle
3. Pulmonary stenosis

From what I can research, individually they seem manageable but I am not sure if together they are much more serious. We have a follow up with the doctor on Friday but I am very anxious in the meantime. Has anyone had any similar experience? Thanks.

3 Replies
  • AHAASAKatie
    AHAASAKatie, August 26,  2020  9:21am EST

    Good morning,  I am so sorry that you are having to manage this! I can share the resources we have on Congenital Heart Defects . I also look forward to reading what other parents have to say by way of support and information. Please know that we are here with you. Best Katie

  • lc189
    lc189, August 26,  2020  8:13pm EST

    Thanks a lot, Katie. Appreciate it.

  • kthom
    kthom, February 17,  2021  12:04pm EST

    Hi! Just wanted to comment and leave some encouragement. My son was born with DORV, VSD, and pulmonary stenosis. He is now 2.5 and is very stable, energetic, and the best big brother. 
    Not sure if you've had your sweet baby yet but I hope things are going okay. 

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