CHD Child
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Hi, I just found this website and wanted to share my story. At 6 weeks of age, we were concerned about slow weight gain with our daughter. She would refuse to eat, and if she wasn't sleeping she was screaming. Our pediatrician seemed to...
read morelatest replyAHAModerator, January 15, 2021 8:57am EST
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New
Hello I'm new here. I'm looking for support. I had twins last December at 33 weeks. I had a boy and a girl. My son is over all healthy except for a thyroid problem. My daughter has multiple heart problems and has had multiple surgeries and is
read morelatest replyAHAASAKatie, October 19, 2020 9:48am EST
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Support Network’s Octoberfest of Encouragement and Friendship
Did you know that the Support Network & MyAFibExperience have about 25 conversation forums for survivors and caregivers of heart and stroke conditions? As I read through all the comments each day, I see similarities in all the conversations. Anxiety...
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DORV, VSD, First-time Mom
Hello, I am new here so not sure how this works. I am a first time mum and after our 22-week scan we have just found out our baby will have 3 heart conditions: 1. Ventricular septal defect 2. Double outlet right ventricle 3. Pulmonary stenosis From...
read morelatest replylc189, August 26, 2020 8:13pm EST
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Returning to School?
Hello! My son is 7 and was diagnosed with Tetralogy of Fallot at birth. He had his corrective OHS at 7 months at which time they also removed his pulmonary valve. He has no restrictions or complications, but I am concerned about...
read morelatest replyOncolman, January 13, 2021 7:27am EST
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Spam Issues
We are aware of the technical difficulties on the site and apologize for any frustrations this is causing. Please know AHA takes this seriously and is working to resolve the problem quickly. Thank you for your patience.
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Hello VSD baby
Hello everyone. In 1967 I was born with a VSD. The heart surgery for CHD was in its beginning stages of life. I was very sick as a child. The dr told my mother I needed to weigh 24lbs. At 4 years old I was able to have my surgery. The dr told my mother...
read morelatest replyAlyAHA, May 19, 2020 6:59pm EST
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TGA baby
Hi everyone I'm a mummy to a TGA, COA, ASD,VSD baby and I made a group on Facebook it's a safe place for all of us to share our wonderful heart warriors and their fight https://www.facebook.com/groups/487180371964488/?ref=share ...
read morelatest replyAlyAHA, May 1, 2020 6:31pm EST
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ASD, VSD and feeding
My daughter is 7 weeks old (3 weeks old, adjusted age). We knew since the 22 week ultrasound that she had duodenal atresia that would need to be repaired surgically soon after her birth, and we knew that she appeared to have a couple of VSDs that...
read morelatest replyBriannagrace, July 28, 2020 1:57pm EST
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Wishing our Community a Healthy and Happy New Year!
Thank you for a great 2019 and looking forward to an even better 2020 loaded with inspiring conversations and support. Best Katie
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