CHD Child
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CHD Tetralogy of Fallot
My name is Lora and I am 22 weeks pregnant with a precious baby boy, our first child. This week my husband and I were told by the pediatric cardiologist that our son has a congenital heart defect called Tetralogy of Fallot. I would love to hear from other...
read morelatest replylsweeney88, June 13, 2019 9:57am EST
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Please Keep Sharing!
There have been so many wonderful conversations on the Support Network these last few weeks. New and returning members sharing what is happening in their world! We wanted to recognize you, say thank you and encourage you to keep inspiring each other! Best...
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We are Growing and Looking for Volunteers to Help Us!
Do you love the Support Network? Have you enjoyed reading the stories of survival, blogs and learning more about the people who make up our caring community? We are expanding our volunteers to help us grow our conversations, create new discussions...
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Did you Know?
Did you know we have a feature on the site that emails you when someone responds to your post? If you have not set up your "notifications", please take a minute and do that. If you have questions, I am happy to help you, just email SupportNetwork@heart.org....
read morelatest replyBL1970, February 1, 2019 9:02am EST
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Subaortic Stenosis - Konno Procedure
Hello, Anyone have any experience with the konno procdure? My 17 year old son has been through 5 cardiac caths, and 4 open heart surgeries. He has an aortic stent, mechanical valve and now they want to correct is subaortic stenosis with the konno procdure....
read morelatest replyDolphinWrite, February 17, 2019 11:13pm EST
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Father of newborn boy with aortic stenosis
Hello, I'm a father of new born boy, today he has 2 months and 13 days old, he is 58 cm and 5.5 kg. We made an Echocardiogram one month ago and it shows as main results Aortic Area was 0.19 cm2 ; speed of blood flow 5 m/s and average gradiant of...
read morelatest replyDolphinWrite, February 23, 2019 10:26pm EST
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Tricuspid Atresia
Hi.. my name is Maria and I am 20 weeks pregnant with a precious girl we will name Arianna.. yesterday we just find out our angel have a CHD called Tricuspid Atresia (after an extensive and very detailed ultrasound)soon after our OBG perinatal especialist...
read morelatest replyDolphinWrite, February 23, 2019 10:32pm EST
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Would love to connect some dots for my son...
Hello everyone! First, let me say that I wish I had found this group months ago. I am so happy to have finally found some decently active CHD boards. I am actually an AHA ALS & BLS instructor, so I’m really not sure why looking here didn’t...
read morelatest replyDolphinWrite, March 10, 2019 10:14pm EST
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I'm 26 yrs old pregnant with my first baby
I went into the OBED for a problem I was having they did an ultrasound and sent me to a specialist at that time I was 18 weeks and 6 days I was so excited to find out I was having a baby boy named AUSTIN MEKHI .well my joy soon turned to turmoil when
read morelatest replyjerzeycate, April 20, 2019 1:20am EST
