CHD Child
Post New Topic-
- 3 replies
- 142 views
- 3 followings
Tricuspid Atresia
Hi.. my name is Maria and I am 20 weeks pregnant with a precious girl we will name Arianna.. yesterday we just find out our angel have a CHD called Tricuspid Atresia (after an extensive and very detailed ultrasound)soon after our OBG perinatal especialist...
read morelatest replytsmckinney, January 4, 2019 2:34pm EST
-
- 2 replies
- 231 views
- 2 followings
Would love to connect some dots for my son...
Hello everyone! First, let me say that I wish I had found this group months ago. I am so happy to have finally found some decently active CHD boards. I am actually an AHA ALS & BLS instructor, so I’m really not sure why looking here didn’t...
read morelatest replyLyoakam, December 18, 2018 1:53pm EST
-
- 6 replies
- 356 views
- 5 followings
I'm 26 yrs old pregnant with my first baby
I went into the OBED for a problem I was having they did an ultrasound and sent me to a specialist at that time I was 18 weeks and 6 days I was so excited to find out I was having a baby boy named AUSTIN MEKHI .well my joy soon turned to turmoil when
read morelatest replyMedicMom, December 10, 2018 11:24pm EST
-
- 4 replies
- 429 views
- 3 followings
CoA and congenital valve defect and ventricular patch outpouching
Hello, I have an 8 year old that had life saving surgery at one week old with nearly interupted arch repair (on life support day 1)...her ventricular patch repair is pouching out and hitting her valve causing possible leakage issue...hence a prospective...
read morelatest replyMedicMom, December 10, 2018 11:42pm EST
-
- 3 replies
- 536 views
- 5 followings
3.5 year old daughter with Bicuspid Aortic Valve. Use of Losartan?
Hi, My daughter is 3.5 years old and she was diagnosed w/ BAV at 20 weeks gestation. She gets yearly echo's right now, but at most recent appointment, our cardiologist noted some mild changes and suggested possibility of starting Losartan in the...
read morelatest replyMedicMom, December 11, 2018 12:12am EST
-
- 0 replies
- 487 views
- 1 followings
Have you taken the Support Network Survey Yet?
We want your opinion! Please take the Support Network community member survey, today! Should you choose to participate, you will be entered into a randomized chance to win one of 5 Support Network canvas bags. Thank you so much...
read more -
- 2 replies
- 668 views
- 2 followings
Double aortic arch
Hi. . my daughter was diagnosed at 15 with a double aortic arch. . That has since been repaired. . However we are dealing with bronchiectasis of the right middle lobe. . Has anyone had lung issues because of their heart conditions?
read morelatest replyClevine, August 9, 2018 10:03am EST
-
- 0 replies
- 688 views
- 1 followings
Interested in Supporting Others?
If you enjoy the Support Network, reading patient and caregiver stories, and responding to others we are interested in talking to you! There are several leadership opportunities on the site and they all start with helping to build up and encourage...
read more -
- 0 replies
- 725 views
- 1 followings
Meet Lee Newton
Meet Lee Newton, comedian and youtuber who has had 4 heart surgeries as a child, one being transposition of the great vessels. She explains her heart stuff at 24 min and 50 sec. 5 min 30 sec for "The Negotiator" Heavy
read more -
- 2 replies
- 751 views
- 3 followings
Road to recovery
Hi everyone! My son Jonathan was born with Partial Anomalous Pulmonary Venous Return, Coronary Sinus Type and diagnosed 2 days after his birthday. He had open heart surgery to fix the repairs when he was just a month old (he’s 6 weeks old as of
read morelatest replycelliott1131, August 12, 2018 6:05am EST
