Suze99
  • 1 reply
  • 83 views
  • 1 followings
Suze99, March 21,  2021  9:18pm EST

Greetings!

On March 27, 2005, I had my first stoke.  The doctors were not able to figure out why.  I was 29 years old.

On May 11, 2019, I had my second stroke.  The doctors were able to figure out why.  I was 29 years old.

After the second stroke, I spent three days in the hospital where doctors discovered I had two congenital heart defects (bicuspid aorta and unroofed coronary sinus). I learned I would need OHS to correct both issues.

It seems our bodies make clots all the time, but most people's hearts can filter them out before they get to the brain.  My heart can't do that.  

To complicate matters, doctors discovered I had two clotting disorders (antiphospholipid syndrome and factor V) that cause my blood to clot too easily.  APS is so rare that only 2 in every 100,000 people have it.  And most of the people who have it don't know they have it.  

Basically, my body is the perfect storm.

On November 25, 2019, I had OHS at Duke University to repair my unroofed sinus and replace my valve.  

After six weeks out of work, I went back just in time for the pandemic to shut things down.

 

It hasn't been an easy road, but I'm here and that fills me with joy.

1 Reply
  • AHAModerator
    AHAModerator, March 22,  2021  8:53am EST

    Good morning,

    Thank you for joining the support network and for sharing your story! I hope that you can find a sense of support and community here as you connect with others. It sounds like you have been through a lot, but I'm glad that you're trying to stay positive through it all. Please keep us updated on how you're doing.

    Best,

    AHA Moderator

dark overlay when lightbox active
dark overlay when lightbox active
dark overlay when lightbox active
dark overlay when lightbox active