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KLYNN78, April 22,  2021  4:47pm EST

Congenital Heart Defect - Transposition of the Great Vessels - Heart Transplant List

Hello All!

I'm 43 years old and I was born with transposition of the great vessels (tgv). I also have a **** in my heart which created a way of compensation so it was never corrected.  I also was born with other anomolies. I have complete situs inversus, cervical degenerative disc disease, skin tags on my ears and gitelman's syndrome (where my kidney's waste all electrolytes).  For the past 3.5 years, my heart function has been decreasing and last year, it was discovered that my right ventricle was "sluggish".  My cardio dr. recommended that I be evaluated for a heart transplant.  I was identified as a high priority and was accepted on the donor list effective this January.

I have been trying to cope with accepting that I will need surgery and I have a lot a fears about it.  My family can't really relate and I glad to join this site.  It makes me feel that I am not alone.

1 Reply
  • AHAModerator
    AHAModerator, April 23,  2021  9:02am EST

    Good morning, 

    Thank you so much for sharing your experience with the support network - we are glad you are here. I am sorry to hear about the potential surgery and the surrounding fear. I hope you will find it comforting to know that you are not alone! As you continue to interact with others on the support network, I hope you will find a sense of comfort and solidarity. In the meantime, I will share a few resources with you on Heart Transplant, Surgery, and CHD Personal Stories.

    Please keep us updated on how you are doing!

    Best wishes,

    AHA Moderator 

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