CHD Adult
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Dealing with fear
2011 was a roller coaster year filled with events for me. My dad passed away, my son and daughter-in-law announced that they were expecting our second grandchild, I walked my daughter down the aisle on her wedding day and finally, 2011 was the year I
read morelatest replyMichellek2, January 10, 2020 12:09am EST
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Too important not to share....
This is from a daily newsletter I receive from a chiropractor: Arterial Stiffness Associated with Heart Failure Can Be Reduced with Exercise. Healthcare providers have previously recommended bed rest to those with heart failure out of fear that...
read morelatest replyNewPacer73, December 7, 2019 9:19am EST
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Bicuspid Aortic Valve Disease and Ascending Aortic Aneurysm
Can someone help me, please! I'm at my wits end and need to speak to others that have, or know, anyone with my Topic Title. I was diagnosed with this November 2017 after 8 years of failing health, many different doctors, countless...
read morelatest replyJamesPL, November 10, 2019 6:54pm EST
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PDA At 35 years old???
Hi Everyone, This is brand new for me and I'm at a loss. I'm way to tired to write out a book but I will say this. I've had two echos done and a ridiculous amount of blood work. All the heart bloodwork came back negative and the...
read morelatest replyCatty350, November 16, 2019 10:26pm EST
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Adult Atrial Septal Defect Repair - How do I find the right CT surgeon?
I have recently been diagnosed with adult Atrial Septal Defect. I have a 1.8 CM hole that is near one of my heart valves. I've been told that I need open heart surgery to patch the hole. Initially, I alternated between being terrified...
read morelatest replyNewPacer73, December 13, 2019 4:01pm EST
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Thank You to those that participated, Volunteers Still Needed for Cardiovascular Study
VOLUNTEERS NEEDED for CARDIOVASCULAR RESEARCH STUDY Hello, my name is Thomas V. Parinello, and I am a doctoral candidate in the clinical psychology program at Fielding Graduate University. I am conducting my dissertation research on cardiovascular...
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Aortic Valve Replacement - Recommended Hospitals?
Hi Everyone, This is my first post. I was diagnosed with Bicuspid Aortic Valve and an "enlarged" aorta 4 days ago. I had an echocardiogram that diagnosed it and a CT scan yesterday for which I am waiting for the results The way I understand...
read morelatest replyricbruce, September 10, 2019 12:49pm EST
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Anomalous Left Coronary Artery Arising from Right Sinus of Valsalva
Im trying to find other people who have what I have. There is not much info out there. I am 46 and was diagnosed with this after having a heart attack they can't seem to explain. I have no answers. The day after I was
read morelatest replyFayzer26, November 13, 2019 7:43am EST
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BAV, still in diagnostics, emotional rollercoaster
Hello all. I've recently been diagnosed with a bicuspid aortic valve congenital defect. I had been having angina (stable) for 4 months, then suddenly had an incident of unstable angina at work that dropped me to the floor and I experienced...
read morelatest replytarajb, August 7, 2019 9:40pm EST
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Fungal Endocarditis
Hi everyone, my name is Patricia, I'm from Brazil. My brother was born with a bicuspid valve. He is 43 years old and had aortic valve replacement. But he had fungal endocarditis. Aspergillus Flavus. We know it is a serious illness. This fungus
read morelatest replyAmbassadorC, July 9, 2019 5:45pm EST
