malloryheart
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malloryheart, January 27,  2019  12:18pm EST

New and not sure where this should go- Venous ulcers?

Hello! I posted about this on another board and never recieved any comments, so I am hoping this will reach someone who can shed some light on my issue.

I am 57, I smoke, I have controlled HBP and familial high cholesterol which I am well treated for. I had a full heart workup recently and my heart is fine. I developed what was thought to be a venous ulcer on my leg. I had an ultrasound which my dr said showed the veins of a 15 year old. So, me and the GP think something else is going on. I see a derm on the 30th as I developed another ulcer with 2 more trying to pop up. I also have palmoplantar pustulosis psoriasis and psoriacric psoriasis, which has limited my mobilty and contributes to my obesity. I see a rhuemy for that and take cosentyx. My ulcers began after beginning cosentyx, a biologic. Which may or may not be the cause. The manufacturer claims that no one else has reported that side effect. 

My big question is:  Can my veins be perfectly fine and still have venous insuffiency causing venous ulcers?

Thanks in advance!

5 Replies
  • JamesPL
    JamesPL, January 27,  2019  5:26pm EST

    That is a question that should really be answered by a qualified healthcare professional. Unless someone has experienced the same issue you have and can share their own experience, it would be difficult to know with any certainty. I would continue to rely on your doctor for answers. One word of advice though. I would urge you to quit smoking. You are fortunate that your heart is fine but I wouldn't push my luck. Please do all you can toward giving it up!

    I wish you well!

    Jim

  • malloryheart
    malloryheart, January 27,  2019  5:30pm EST

    Well, thanks. I was actually hoping that someone with experiece would answer. I have plenty of doctors and none of them have any answers.... yet.

  • AHAASAKatie
    AHAASAKatie, January 29,  2019  9:33am EST

    HI Malloryheart, this sounds like a truly challenging issue to have to manage. When I am stumped by a medical question I usually turn to the science/research people. I found this study on The National Center for Biotechnology Information website. The NCBI advances science and health by providing access to biomedical and genomic information and this might be helpful to you.  Chronic Venous Leg Ulcer Treatment: Future Research Needs

    I am also hopeful that someone with experience with this specific condition will answer as well. If they do, I urge you to talk through their response with your medical team before making any treatment decisions. 

    Please let us know how things go for you. Best Katie

  • malloryheart
    malloryheart, January 29,  2019  9:41am EST

    Thank you very much for your input. Before I posted here, I did A LOT of research into science and medical journals. I have spent hours researching. The trouble is I do NOT have venous ulcers, per say, as they are caused by venous insuffiency which I do not have. Almost every thing I have found speaks to venous insuffiency. I have yet to understand what my ulcers are caused by.  

  • malloryheart
    malloryheart, January 30,  2019  2:02pm EST
    1-29-19 (3)crop.jpg.
     

    I may have an answer, if anyone is curious. I saw a dermatologist today. He is leaning toward a rare auto immune thing called pyoderm gangrenosum. Biopsy results in 2 weeks, but I'm pretty confident that that is what it is. 

     

    No more compression socks! Yay!

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