jj889
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jj889, July 16,  2019  7:07pm EST

Blood pressure 270/153 July 14 -High For WeeKs

Just got home from the hospital today with a BP reading at time of discharge at 187/93. About 4 weeks ago my blood pressure went ballistic, with my systolic in the 170's and higher, and diastolic over 100 (it actually reached 177)! I have been on carvdilol (Coreg) 6.25 x 2 for years, Hydrochlorathizide 25mg and Diltiazem for supraventricular tachycardia. At the hospital nothing worked--NOTHING the past three days. Nitro patch, labetalol, Aldomet... I was extremely dehydrated, and I am a diabetic with very high sugars of late. Sunday I arrived at emergency with BP 270/153.  The doc and family members think its my medication, but it seems to me one of the meds would had brought down my numbers in the hospital. No matter what I take, my numbers rise back up in a few hours, really the best range has been in the 150s over 80s--and only a few times the past weeks. Kidney function is normal, ultrasound shows fatty liver disease which I have had for years. I am inclined to think there is a structural problem but no one in the medical places I have been to is listening to what I say. Any opinions, life experiences,  or suggestions would be greatly appreciated.

  • Stiffy
    Stiffy, July 17,  2019  12:01pm EST

    I'm so sorry!  I've had high BP but nothing like this!  I'm sure it feels like you're standing in front of an oncoming train ALL the time!  I do know that feeling.  Wish I could give you some helpful advice but can only say that I'm in the same boat....looking for answers that will save my life but each doctor seems to think my condition is out of their field.  I've spent the last 6 months just trying to get a diagnosis.  My BP went up to 177/100 and I thought that was high but yours....WOW!  Did you have a heart attack?  (not that that matters, obviously there are some big issues).  For me, I have no idea when to go to the hospital.  My cardio just told me to stop taking my BP at home since the anxiety makes my BP go up more.  I never get answers from any specialist I've gone to so I guess I just wait for that crucial moment???  

    I hope you get some answers!  Although it doesn't help...there are lots of people here that can relate.  I guess it's true of the old saying "misery loves company"...lol.  It is nice to have folks there with you when you're going through this terrible experience.  

  • arogya
    arogya, July 17,  2019  1:02pm EST

    Well, I've seen 220/110 and live to tell the tale ! You're absolutely right about the train ! Blood pressure depends on liver, lungs, kidneys, heart, stomach, skin, pancreas and arteries. Yeah, everything is involved in blood pressure which is why hbp is a symptom than a disease. Getting to root cause requires testing of so many functions. Liver as mentioned by OP is in the angiotensin Renin cycle which when excess causes arteries to constrict, raising blood pressure. Skin, you wonder? It's involved in making Vit D, which is necessary for making so many hormones some of which are necessary to regulate arterial health and blood circulation.

     

    How was your hearbeat prior to meds and what is it now? Is your blood work normal, including vit d, vit b12, LFT, KFT ?  For fatty liver, do eat citrus fruits generously for a few weeks and see if it helps. I wonder if your doc;s assessment is that your liver would not tolerate an ARB drug, but no harm asking, plus age matters too in this drug choice. I say this since you're on Beta blocker, CCB and diuretic but no ACE or ARB which would have been more common. 

  • jj889
    jj889, July 17,  2019  5:46pm EST

    Thank you both for posting so quickly--Each of you have had some terrible numbers so you definitely know the horror of it!

    Stiffy, I question your doc's advice not to check at home--at least hope he or she can get you into their office immediately so your BP could be checked! On the weekends, if you feel like you are running high go to an urgent care. I had a PAC say check my BP "once a week" at an urgent care two weeks ago, because he felt I was anxious (189/113 during the exam), and my primary doctor's nurse felt what he said was ridiculous. Also, to answer your question, I had a Type II heart attack--stress related, in 2016. I have a 30% blockage in one valve, but no permanent damage occurred according to tests conducted at the time. Keep looking for the right specialist, to me testing is the key to gain answers. But its got to be the right tests!


    arogya, all throughout the past weeks of high BP numbers, my pulse has been normal, even lower than usual. It typically runs around 85, but since the high BP numbers started, my pulse runs around mid 70s. I am hoping my lab results will be in my patient portal soon. My vitamin d seems always low, I am now taking 4000 units a day. I have several neurological diseases, ET, blepharospasms, BFS syndrome and my neurologist quit before he looked into neuromuscular diseases. Potassium is a big problem for me, my body cannot process it right, making my neurological problems worse. I do not tolerate ACE inhibitors and ARBs well--I wonder if potassium is playing a role with those drugs. My liver values have been consistently flagged on labs for over two years now.

    My doctors are frustrated with me. I am allergic to many things: pectin, nightshades (and I also have RA), mustard, dyes...and many medications. My sole fruits are lemons, peaches, watermelon, and strawberries-- but I will certainly up my fruit intake.

    If either one of you find your numbers stabilizing at a good level, please let me know what steps were taken to get them into an acceptable range. Have you had tests other than labs to search the cause?  I am not convinced my BP medications have become ineffective and I am concern for a secondary cause.  It is nice to have people who understand and to know I am not alone--just hate the fact we all have bad numbers! Thank you both!

  • arogya
    arogya, July 17,  2019  9:15pm EST

    Hi jj89, 

    Sorry to hear about your issues; will support you with my findings from research, lessons I learnt from brave self-hacking :-) and wishes for you to get better ! 

    I indeed suspected that your current heartbeats would be lower than your normal since bp has elevated. Like everything else in the body, the circulatory system tries to maintain what it thinks is the normal, and once the heartbeat is lower, it tries to compensate for it by increasing blood pressure to maintain a constant volume of blood flow. This is one possbility. Given your deficiency in potassium, it is possible that you also lack magnesium, since they often go together. Unfortunately, serum magnesium is not an indicator of true magnesium levels in muscles, since the body tries to maintain serum Mg at the cost of leeching from muscles. Since Mg is a harmless supplement, you can try those, say 200 mg a day and this improves cardiac profile. Vitamin D taken for long may cause calcification of arteries, to you may want to consider pairing it with a 50 mcg of Vitamin K2

    My number seems to have stabilized much lower now, and on lower dose of medication too! I run currently at a daily average of < 130 / < 85, and it would've been even lower if I dont spike early mornings, which is about 20  points higher than daily average! But considering my daily average was in 170s, this is a HUGE improvement. I am trending down on the nbp numbers and my medication dose at the same time ! So my steps to get here:

    1. Cut coffee & sugar out completely. In fact, most processed/refined foods. 

    2. Lots of salads, and lots more salads. This builds potassium and other minerals necessary for heart health, like 10-15 oz per day, not in a single meal. I also eat bananas, potatos and raw beets every single day, to increase Potassium and Nitric Oxide. 

    3. Hibiscus tea, at least 2-3 times a week if not daily

    4. Vit D supplement ( i was low too), I take 2K per day, my Pot levels are fine, and no other symptom indicating any mineral deficiency. 

    5. Cut rice/wheat drastically and switch over to millets

    6. Cut out animal products and replace with plant sourced alternatives. 

    7. At least 10 mins meditation daily, this reduces cortisol production which is one of the triggers for excitement/anxiety. 

    8. I have always worked out, so continued that  - resistance training, walking and yoga+pranayam. 

    One other test which my doc ordered was the Arterial stiffness test, which as the name indicates measures how stiff your arteries are. It turned out that my arteries are 20 years older than my age :-) !! This stiffness is a major cause of my bp. It can be reversed gradually over time by improving endothelial function and that is helped by exercise and right foods. 

    I hope my long post helps ! 

     

  • Jojoteacher
    Jojoteacher, July 18,  2019  8:55am EST

    Hi there,

    After being more ol less stable on atenolol and triemterene for many years, my BP went up suddenly to over 200/123. I work out 6 days a week, eat well, and I’m pretty fit, so I think that my high BP is due to heredity (mom). I have a lot of other health issues: lupus, low thyroid, anemia, history of DVT and pulmonary embolism and I’m on a myriad of meds. Long story short, BP stayed  up for weeks. Despite 3 ER visits, changes in meds, and a multitude of tests. It finally stabilized in the past week. I’m now on 2 atenolol, 1 triemterene, and 1 losartan. That seems to do the trick (fingers crossed). The best part? The terrible headache that I always get when my BP gets high? That’s gone :)

  • jj889
    jj889, July 18,  2019  12:40pm EST

    Hey arogya!

    Thank you for sharing your strategy with me! I do take magnesium at 600 mgs a day. I did not know vitamin d can be detrimental to the arteries with long term use. I will definitely look into K2. For a while I was taking Nattokinase to reduce scarring from a botched medical procedure and I stopped it a year ago. I learned Nattokinase has ACE inhibitor properties, and it is purported to reduce blood pressure and protect arteries. I had negative effects from it too, but not to the extent I had with Linsiprol and Enaapril.

    It is great to know your numbers have stabilized--this is also encouraging for all us in similar situations! If I can get and stay in the 130s I would be one happy camper. I will try some of your suggestions, but coffee is the first thing I do when I get up in the morning. I am simply too weak to forgo coffee!

    I would like to have the artrial stiffness test you mention, and will look into getting the test.  Myself, having Rheumatoid Arthritis, and being a cancer survivor with radiation to boot, I would not be surprise my former good tissues have been fried. I will be upping my Omega and hawthorn extract, which in the past helped my BP numbers, but not lately.

    Thank you again for your good advice! I greatly appreciate it! You certainly have made great improvement and I wish you continued success!

  • jj889
    jj889, July 18,  2019  1:10pm EST

    Hi Jojoteacher,

    You certainly had some terrible numbers! I gather from your account your medications were key to getting your numbers down. I hope this will be the case with me. My family also has a propensity to have high BP, even the fit and exercise conscious members. I do know I have a goiter a two year old MRI mentioned was near the point of potentially impacting my jugular vessel in my neck. I mentioned this during my hospital stay but no one looked into it. Perhaps its inconsequential to the high numbers...still not sure about it.

    After my heart attack, my primary doc order Hydralazine, but I have read it is not good for people with autoimmune conditions. It can mimic symptoms of Lupus, which is a terrible disease to deal with. I am sorry to hear you have so much hardship upon you.

    I would like to try Atenolol myself. I want to thank you for sharing your experience with me. It seems like for all us its going be a process of testing, trial and error with meds, and finding the right medical people to help you along the way. For you to have a number of good days now with your BP is really encouraging! I wish you all the best and hope for better health for you in the future!

  • DolphinWrite
    DolphinWrite, July 18,  2019  6:13pm EST

    All I know, and you got great information from others, is the body is mysterious, so tests and lifestyle changed are what I know from patients who have sha red their stories.  Second opinions and self research are important.  If I had only listened to my first cardiologist, I"d still be just walking instead of 90 minute workouts and cycling.  I've read how different medicines can interact.  All the best. 😇🤗

  • jj889
    jj889, July 18,  2019  6:59pm EST

    Thank you DolphinWrite. A lifestyle change is definitely in order to the extent I can do so. I never considered how my medications may be interacting together. Thank you and best wishes to you as well!

  • anna76
    anna76, July 20,  2019  9:01pm EST

    Wow to jj889.

    I have learned through my ventures with my HBP that you always fight the hard fight.  I Have also learned food is medicine! I changed my diet completely!

    I do not smoke.

    I do not drink any alchohol.

    I do not eat any at any fast food places.

    I do not do any coffee.

    I eat a plant and fruit based diet (at times a piece of Cod I make at home)

    I have learned to sit and do 30 deep slow breaths in and out no matter where I am out if I feel a little "off."

    I take pleasure in educating about Diseases of the body now.

    I do my very very best to walk away from stress and ask myself if the situation will mater in a year!  Probably not.

    I have HAD to believe in a power of something!  Mine is God, I do pray and believe.  That is just me, many of my friends don't believe and I am fine.  I just need too!

    I have pets!  But one pet would do for most people to love on.

    I also learned with some Doctors that I may not be taken very serious!  SO, I DEMAND proper health care, it's OUR right.

    Also I have learned to say NO.   These small steps are very important for our bodies.  HBP is a symptom of something else going on.  Sure our parents could have had it, so we have those 'markers' but this does not mean they need to be turned to the on switch. But some of us do turn them on, working too many hours, not showing kindness, eating what is not a real food, not drinking enough pure water!  Sitting on our rear ends often...etc.

    Remember when most moms would say "Go out side and play!"   She had it right.  We need to feel the earth, dirt...not concrete under our feet!  Also she said "Eat your vegetables"! She had it right!   But gosh I hated them. Sat at the table until it was time for my bath.

    I know society has changed, and not for the better, we had been forced to change with it.  When is it time for us!?  To walk, jog, laugh, talk to others etc?

    I think the Doctors are indeed missing the bigger picture.  I know they are trained in medicine, but they know more...they know better as well. To say take your meds. but go see friends and have a belly laugh would be great advice.  And just may save a life!!

    I am saying this because the simple small steps ad up to huge steps in our health.  

    We have the right to demand better health, we are hiring these people to take care of us!   Educate about every illness you have, put it all together and chart it. Take what you learned/know to your doctors and demand to get those numbers down!!   

    And if you feel there is a problem?  Demand the tests and answers.  Demand doctors talk to you as they would their family in crisis. 

    PS and have a strong support following while finding answers.  Talking about our problems can be great medicine as well ;)

    Lotsa luck.

     

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