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Update on baby Jaykob
Well it's been a while since I did an update and I can't find the original post.
Jaykob was born Oct 2, 2019. He had his first OHS at 6 days old follow by 6 micro strokes which led to seizures. He had multiple Cath Lab trips before having his second OHS on Feb 4, 2020 and was on ecmo until he had another OHS 6 days later. This was followed by another 6 micro strokes. We ended up being in the hospital until July 21, 2020.
At 5 months they told us he wouldn't make it home.
I'm happy to say we have celebrated his first birthday and holloween at home. He was a bb dragon.
It's difficult and different. I'm exhausted most of the time. And I know we have a long way to go but I know we can get through it. He's growing well and we were recently told he is developing faster than they expected after his lengthy hospital stay. He now has 5 words and found his toes for the first time a couple weeks ago. He is becoming more vocal as time passes. We still can't sit up or crawl (he hates being on his stomach) but we are making progress.
JamesPL, November 22, 2020 8:19am EST
This is wonderful news! It's so good to hear he is improving! Take it one day at a time. Wishing you continued success in Jaykob's progress!