Moonchyld
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Moonchyld, November 20,  2020  10:06am EST
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Update on baby Jaykob

Well it's been a while since I did an update and I can't find the original post. 

Jaykob was born Oct 2, 2019. He had his first OHS at 6 days old follow by 6 micro strokes which led to seizures. He had multiple Cath Lab trips before having his second OHS on Feb 4, 2020 and was on ecmo until he had another OHS 6 days later. This was followed by another 6 micro strokes. We ended up being in the hospital until July 21, 2020. 

At 5 months they told us he wouldn't make it home.

I'm happy to say we have celebrated his first birthday and holloween at home. He was a bb dragon. 

It's difficult and different. I'm exhausted most of the time. And I know we have a long way to go but I know we can get through it. He's growing well and we were recently told he is developing faster than they expected after his lengthy hospital stay. He now has 5 words and found his toes for the first time a couple weeks ago. He is becoming more vocal as time passes. We still can't sit up or crawl (he hates being on his stomach) but we are making progress.

1 Reply
  • JamesPL
    JamesPL, November 22,  2020  8:19am EST

    This is wonderful news! It's so good to hear he is improving! Take it one day at a time. Wishing you continued success in Jaykob's progress!

    Jim

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