Moonchyld
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Moonchyld, August 14,  2019  10:53pm EST
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Mirror dextrocardia

My grandson is due Oct 6th. He has mirror dextrocardia with severe aortic valve stenosis and decreased LV function. The staff at UC Davis has been wonderful working with me and my daughter and trying to help us understand everything. But I need all the help I can find to make sure I understand what's to be expected.

  • clnal90
    clnal90, August 15,  2019  6:29am EST

    I don’t know anything about that disorder but will do research and ask my brothers cardiologist for clarity as well as keep you all in prayer. Feel free to contact me anytime I’m here to just listen. 

  • AHAASAKatie
    AHAASAKatie, August 15,  2019  7:44am EST

    Good morning, I am not familiar with this condition. However, I did find this article, EZEKIEL'S STORY: ONE EXTRAORDINARY LITTLE BOY FROM CASPER! that might be of interest to and helpful to you. Please let us know how else we can help you. Best Katie

  • Moonchyld
    Moonchyld, August 18,  2019  6:42pm EST
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    This was all I could find but it only mentions dextrocardia not mirror dextrocardia

  • NStacks
    NStacks, September 16,  2019  9:01pm EST

    Do you know if it is just his heart that is mirrored? My son was born with dextrocardia situs inversus totalis but that includes all of his internal organs being mirrored. I do know that if it is just the heart then it will be required to be surgically moved because of the shape of the lungs but if it is everything, then it is less to worry about. My son is now 19 and does pretty good, we didn't find the dextrocardia until he was 2 and had pneumonia which involved x-rays being done. We discovered at age 10 that he in fact also had patent ductus arteriosis and that causes him some breathing problems, but he has played sports since he was young and we developed breathing exercises over the years to help him build up endurance. I think that the fact that they are already aware of your grandson's health concerns prior to birth will definitely help them give him the best care upon his arrival though, and I will keep all three of you in my thoughts.

  • Moonchyld
    Moonchyld, September 23,  2019  8:33pm EST

    His heart and stomach both go to the right instead of the left. We have a week before he will be induced. Sept 30, 2019. We won't know about the rest of his organs until after he's born. 

  • Moonchyld
    Moonchyld, October 2,  2019  9:02pm EST
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    He was born Oct. 2, 2019 @ 1:58 pm. 7lbs 10oz, 20.5 in, 36cm head.

  • AHAASAKatie
    AHAASAKatie, October 3,  2019  10:29am EST

    Thank you so much for sharing this photo, he is just precious. Can I ask his name and how is he doing now? Best Katie

  • Moonchyld
    Moonchyld, October 3,  2019  1:26pm EST

    He's having some function issues so they are doing the first procedure. His name is Jaykob

  • Moonchyld
    Moonchyld, October 7,  2019  8:08pm EST

    So big news he's having surgery tomorrow

    " Hybrid Norwood" pulmonary  artery banding and stent implantation of the PDA

    " Balloon Atrial Septostomy"

  • Moonchyld
    Moonchyld, October 8,  2019  7:54pm EST
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    He came through his surgery with flying colors. They even gave him and award. Now for the healing phase.

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