chrishs
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chrishs, September 23,  2020  12:56pm EST

LOOKING FOR SUPPORT AND GUIDANCE FOR STROKE PATIENT

Hello all,

My younger brother had a massive stroke 6 months ago and is currently in a skilled nursing facility in CA. whereas I am in Minnesota. They have stopped OT and PT therapy seeing no progress (he is paralyzed on his left side) and is also incontinent. Currently he needs 24 hr care although he has shown some improvement since he first had the stroke. I am looking for more information on stroke, what to watch for, what to hope for, what doe sthe future hold for him, etc. Learning all of this from square one, the family did not see this coming. My brother was also the caretaker for my elderly mother and she has dementia. I relocated her from CA. to MN. and am caregiver for her as well and have found a support group through The Alzheimer's Association. Looking for similar support group for stroke caretaker to share what I am goingthrough and get questions answered. Appreciate any replies.
Best,
Chris

2 Replies
  • AHAASAKatie
    AHAASAKatie, September 24,  2020  10:03am EST

    Good morning, I am so sorry that your family is having to manage this. I can share the information we have on Life After Stroke for you. We also have a specific section of the Support Network dedicated to Stroke Caregivers.  While I can't move your post to that section, if you can repost in Stroke Caregivers you will find caregivers like yourself to talk with. 

    Best Katie

  • JKViggiano
    JKViggiano, September 24,  2020  2:37pm EST

    Hi Chris. I am so sorry to read about both your brother and your mother. Neither is easy to deal with. 

    Regarding your brother: There is always hope!! He is still in the early stage of stroke recovery. As long as he is willing to work on recovery, recovery is possible. Our neurosurgeon told us "those who want it most, recover best." That became our battle cry. My husband is 12 years post-stroke. He lost his right side, his ability to think clearly, speak, and remember. We relentlessly pursued recovery. We set crazy high goals and even though we never hit any of them, we have recovered far more than anyone thought possible. We saw active improvement for about 8 years. He now walks, mostly talks, and remembers. Thinking clearly is still a problem but he is MUCH better than he was those first few years. 

    Recovery is hard work. It can be tedious and slow. Don't let that stop you or him from continuing the fight. He will only be defeated if he accepts defeat. Good luck and God bless. jil

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