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estrella15, February 13,  2021  12:01pm EST

Advise on moving my mother from one state to another with Medicaid

Hi, I am new to this network and am really grateful to everyone who have shared their stories as it has given me strength and a sense of support.

My mother has suffered a stroke at age 61 (SAH 4).  She spent a month in the ICU where she underwent a couple of surgeries including a craniotomy and then another month in an LTACH where she was weaned off the ventilator and just last week, she was transferred to a nursing home.  I was able to see her in the ICU and the LTACH but due to this pandemic, I can't see her in the nursing home and Facetime is limited to once a week. 

My mother opens her eyes, responds to light, noise, touch and pain but is unable to follow any commands.  Early March, a CT scan will be performed to see how the swelling is on her brain and also evaluate if she's ready for a cranioplasty and I believe to see if there's any brain activity.  Sometimes, I feel unsure of what to really ask the doctor's at this point as I always get the "it depends" respond and the "wait and see."  

I am 33 yrs old and expecting my first child in May.  I live in PA and have been renting an Airbnb in NYC to be near my mother.  As I am learning how the insurance and medical systems work, I'm being told by non-Medicaid experts that Medicaid differs per state and that NY Medicaid has much more coverage than PA Medicaid; particularly because my mother has worked most of her life in NYC.  I honestly don't know what this means nor what type of coverage is being reffered to.  I would like to transfer my mother to PA so I can be near her (considering no family member lives in NY either) but I don't want to make the mistake of changing her Medicaid to a lesser coverage; so I'd like to confirm what the coverage differences are. 

Does anyone know of a consultant / adviser who has Medicaid expertise in both NY and PA states?  Has anyone gone through this experience and if so, how did you go about it?  How did you go about establishing residencing on your loved one in the new state if they're unconscious?

Any help / advise you can provide is heartily appreciated.

Please stay safe and healthy and hug and kiss your loved ones each chance you get <3 

1 Reply
  • AHAModerator
    AHAModerator, February 16,  2021  10:04am EST

    Good morning,

    Thank you for sharing your story with the support network! Your mother is lucky to have your support during this time. As you hear from others on this forum, I can also share with you the Stroke Family Warmline to connect you with an AHA team member who can provide support, helpful information, or just a listening ear: 1-888-4-STROKE (1-888-478-7653). Please keep us updated on how your mother is doing.

    Best wishes,

    The AHA Team

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