Samiejo26
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Samiejo26, October 13,  2020  3:21am EST

A new diagnoses.

Hello friends. 

My name is Samie Jo and I am 26 years old. My husband is 39, and today we were told he has congestive heart failure. 

I want to help him in this journey, in this battle... But I am currently in shock. I cannot wrap my mind around it. My husband of only 2 years, the father of my only child, lays sleeping in a hospital bed right now, while I sit awake in my home... Crying and trying to gain the strength to sleep, or stand, or breathe. 

We dont know what stage it is in yet. We don't know how long he has, what to do, what questions to ask doctors.... We dont know. 

I need help. I need to know how to help him in daily life, when he comes home, what can I do as his wife to make this transition less painful? 

How did you grapple with your "persons" diagnosis, and what were the first steps you took? 

How do I move forward? Please.... Send thoughts, prayers, peace and advice my way. 

3 Replies
  • AHAASAKatie
    AHAASAKatie, October 13,  2020  8:55am EST

    Good morning, I know this is such a hard time for both of you, and  I am truly glad you are here sharing with us. Treatments for CHF have come a long way and as hard as it is, try not to go straight to the worst-case scenario yet. I can share the extensive resources we have on congestive heart failure with you. We have a downloadable sheet "Heart Failure Questions to ask your doctor," which can help organize all of the information that will be coming at you over these next few days. 

    Please know that we are here for you and want to support you both through this time. 

    Best Katie
     

  • JamesPL
    JamesPL, October 14,  2020  8:00pm EST

    Hi Samie Jo,

    The best advice I can give you is to not panic. That is a very common reaction and one that I myself had when I was first diagnosed. But it is true that treatment has come a long way in this high tech world we live in. We are doing things today that were unthinkable only 20 years ago and it is only getting better. It's very important that you have extensive consultations with his doctors so you know exactly what you are facing and what the treatments will be. This will help you both in being able to deal with his diagnosis. Yes it is a shock but you will start to accept his condition and do all those things his doctor is advising. I was in complete denial when advised on what my treatment should be but once I accepted it, I decided I was going to do all that I could to get past it and move on with my life. 

    The best thing you can do for him when he comes home is to be there for him and support him. My wife had made some changes in our house to make me feel more comfortable during my recovery. Regardless of the results of her efforts, just the fact that she tried to help me was very important. She was there for me and I found that very helpful for my mental well being.

    I wish you both all the best and hope for an excellent recovery!

    Jim

  • Worker1
    Worker1, October 15,  2020  2:27pm EST

    Dear Samiejo26,

     

    My husband was diagnosed with Congestive Heart Failure last year so I know what your going through right now. It's so hard to hear those words from the doctor for both of you I'm sure. I can offer this advice for what its worth: Weight loss is so important and sticking to a low sodium diet is paramont. This has been very hard for my husband as he loves food as do I. His symptoms got better when he left the hospital but unfortunatly we are back to square one with his breathing problems because we haven't been as diligent as we should have about him loosing weight. 

    Now that I see how much hs is struggling I'm determined to put him on a strict diet and stick to it this time. I'm also having his meds reviewed to make sure that he's getting the best treatment for this condition. He's terrified of COVD-19 so going in to the clinic to see the docotor isn't going to happen. I'm going to call today to see if I can get a house call from his internal medicine doctor whom he just adores. 

    Stay strong and stick to a health diet and you will have quality time and more of it is my best advice.

    Take Care,

    Emily (Worker1)

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