• Congenital Heart Defect

You are not alone!

You have found the right place. Whether your child was just diagnosed or has been living with a congenital heart defect for an extended period of time, we are here to support you throughout their recovery journey. Reach out to others, just like you, in addition to your family. Share your real-world heart experiences in order to regain a sense of encouragement and confidence. Help other heart patients and their caregivers. Tell us how it happened and what you and your family have experienced. Become a member today.

Recent Conversations - Your Child and CHD

Signs and Symptoms

What is a congenital heart defect?

Congenital heart defects (CHD) are problems with the heart's structure that are present at birth. These defects can involve:
  • The interior walls of the heart
  • The valves inside the heart
  • The arteries and veins that carry blood to the heart or the body
There are many types of congenital heart defects. They range from simple defects with no symptoms to complex defects with severe, life-threatening symptoms.

Please Note: The information posted on this community site is not meant as medical advice. Be sure to do your own research and talk to your physician before acting on anything you see in this community. 

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The Children's Heart Foundation

Friend’s Baby in the Hospital? Here’s How to Help!

In honor of Congenital Heart Defect Awareness Week, Amy, a writer, editor, crafter, recipe developer, wife, and mama from Iowa, penned a post on ten ways you can help a family whose child is in the hospital, whether due to CHD, pediatric stroke or another ailment.

TELL US: When your child faces an extended stay in the hospital, what are some of the most helpful things your friends and family have done?...
Posted by Jessie VanLandingham in Support Network Blog Feb 13, 2015 10:39 am CST

Browse Communities

  • If your child has been diagnosed with a heart problem, you might have lots of questions and concerns. This group can be your sounding board for anything on your mind, as well as a place to share what you've learned with others.
  • This group is for parents of children who’ve experienced a stroke when they were under the age of 18. It's a great place to share your experience, challenges and ideas, and to connect with other parents who’ve been there. 
  • Your child will be discharged from the hospital with many instructions. This group is a great place to connect with other parents who are also transitioning their child home after heart surgery.
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